March is National Kidney Month, and the Day is Thursday, March 9th. Many people with lupus develop problems with their kidneys, so this day and month of recognition are significant to us and our community. Lupus can cause a kidney disease called Lupus nephritis – inflammation in the kidneys that can make them stop working.…
Lupus Clinical Trial Awareness in Australia Help Advance Lupus Drug Development Many people diagnosed with lupus still have symptoms despite being treated by their doctor. If you have active discoid and/or subacute cutaneous lupus erythematosus (DLE and/or SCLE), you can volunteer to take part in a research study currently enrolling adult participants. Participants who take…
Research Reveals Unique Sub-Groups of Type 2 Lupus (Extract from Lupus Foundation of America) A new study provides insights into the nature of symptoms experienced by people with lupus. While Type 1 and Type 2 lupus models (described below) have previously been identified, the latest research expands upon and refines these definitions, revealing two new…
Study Finds mRNA COVID-19 Vaccine and One Booster Dose May Not Fully Protect against Breakthrough Case of Omicron Variant in People with Autoimmune Disease In people with autoimmune rheumatic diseases (ARDs), such as lupus, the mRNA COVID-19 vaccine and booster dose may not provide broad protection from developing a breakthrough infection (an infection with a…
Celebrate World Lupus Day The World Lupus Federation invites everyone around the world to participate in the annual observance of World Lupus Day on 10th May. A global health problem, lupus affects people of all nationalities, races, ethnicity, gender and age. Lupus can affect any part of the body in any way at any time, often…
World Lupus Day with the PM Barbara Ward the CEO of Lupus Association of NSW met the Prime Minister Scott Morrison at West Ryde today and discussed with him World Lupus Day and the new drug Anifrolumab. This drug is now available in Australia but has not as yet been accepted by the PBS. See…
World Lupus Federation Global Survey of People Living with Lupus finds 87% Report at Least One Major Organ Affected by the Disease In a recent international survey, the World Lupus Federation found that 87% of the survey respondents living with lupus reported that the disease has impacted one or more major organs or organ systems. Over…
Sinclair Dermatology are actively seeking male and female Victorian residents aged 18 -80 years with a documented diagnosis of cutaneous lupus erythematosus (CLE) for a minimum of 3 months. Patients are required to have active cutaneous lupus and be a candidate for systemic treatment. Approximately 30-40% of patients with CLE are not responding well to…
FDA Approves Saphnelo™ as New Treatment for Lupus The U.S. Food and Drug Administration (FDA) has approved Saphnelo™ (anifrolumab-fnia) as a treatment for adults with moderate to severe systemic lupus erythematosus (SLE) who are receiving standard therapy. Saphnelo is the third therapy for lupus to receive regulatory approval since 2011. Developed by AstraZeneca, Saphnelo is…
Do you have SLE?. If yes, the research team at the University of Southern Queensland would highly value your participation in this Doctor of Philosophy research project.
For more information please see the attached flyer:
https://staging.lupusnsw.org.au/wp-content/uploads/2021/06/FREE-Exercise-intervention_SF_2021.pdf